This is a good one. So how on earth did they assume I’m no longer disabled? I’ll answer that right here, right now.
Speaking on behalf of many people with disabilities – we don’t get goverment support (ca$h) just because of our bad luck and it being a compensation as some might assume. We get the support because most of us can’t do regular jobs, build income, afford a living situation. Some of us work from home if possible, some more abled ones get jobs which they can attend to. So the support is needed because we are very limited in ways. This support sometimes eliviates some limitations, for example, special medicine that someone might need to go work. A modified car, so they can go do a job, and so on.
I need the support to do physical therapy, to be transported around, to buy medicine, to have help 24/7. In my spare time I can do some work, freelance, have a hobby etsy shop. So you can assume my income is below average in the sense of how much “work” I’m able to do.
My cat also thinks I’m faking
I won’t name numbers but here is where the story gets fun. (Or should I say sad?)
With fun changes in how the government decides if you’re disabled or not they now do thorough inspections. With like 9 pages of detailed questions about the most intimate as well as mundane things of your life.
Questions like can you walk? Can you lift a spoon? How do you go to the ladies room? How far is your closest market? Do you shop? Can you put on socks? Are you capable of making decisions? Are you capable of doing daily tasks? Can you poop? Can you swallow food?
So you can imagine the fun of answering all o’ that to the person who’s evaluating you. It’s just great times.
We all understand that some people might be faking some illnesses to get money and that’s why the tough evaluation, but. Firstly. It’s a little bit degrading. You’re not my personal doctor and you want to know more just so you’re entirely sure I neeeed the support.
My doctors have written my dianosis and know me for 26 years and now you, the goverment random ergotherapy person knows BETTER? THAN MY DOCTOR?
“After the evaluation we have decided that you don’t require government care.”
Okay, thanks! Wait, what? I think I misread that. Nope, I did not.
Since I’m “no longer disabled” my great life can start! Wait, that’s not how it works. What now? Seeing my plumetting bank account I cancel physical therapy, ask mom to buy me my medicine, thankfully this is the last month where I needed to pay off my phone.
Since I’m living with my family I have the luxury of them taking care of general bills. Them helping me get by. But what now? I was dumbfounded, but not even as close as my parents. Best comment my mom made “What do they mean “you’re not disabled”?! I’m gonna go to their office, drop you off there and let them take care of you!! That’ll show ‘em how not-disabled you are!” We laughed. Laughed with slight disbelief of what had happened.
Of course, we are going against the grain and required to do another evaluation. Claim a dispute. Fight back.
We were told that if you’re basically not a bed-ridden vegetable, then you’re not that disabled really. And on one of the evaluation questions of what I do in my spare time my mentioning of drawing was quickly shushed, because that makes me too able and I could get denied again. At least this evaluator had the human factor.
I still have not gotten an answer. First time it took months of papers and issues and now here we go again. Waiting for the unknown, basically months of waiting for a verdict that should normally upset a person but I really hope they give me back my title of disabled so I can continue to live a decent, healthier life.
So that is the story of how I lost my disability support!
Categories: My Life in Words